seize_the_facts001001.jpg
O
U
R
 
J
O
U
R
N
E
Y
 
W
I
T
H
 
E
P
I
L
E
P
S
Y
Sam was diagnosed with Epilepsy just before his eighth birthday, but was having seizures for at least 2 years prior to this. We just did not recognize what was going on, even when I saw him having a tonic clonic seizure, while napping, at age 5. I did not know you could seize in sleep. He was able to participate in "Kids Speak Up" in 2002, sponsored by the Epilepsy Foundation of America. This was an opportunity for him to meet 29 other children with Epilepsy and to go meet his Congressmen and Senators as well as their staff. We were able to share Sam's story. We asked that they remember Sam and his struggles as they see legislation that would help those who are dealing with this disorder. Sam and his sister Anna have written pamphlet-style books about their view of Epilepsy. He has also written one on his VEEG testing. We have been giving these away as we are able to help others who are also on this rocky road of Epilepsy. Anna has done several school projects about the brain and seizures seeking to understand more. She is doing a good job helping others comprehend how this diagnosis changes lives. Sam has learned to reach out to others who struggle. He is quick to speak to the special needs kids at church, check on the widows, hurting and struggling people. We seek to use every opportunity to teach others about what epilepsy is and how to live a full life despite this entering our lives.
You may print out their stories if they will help you understand or teach others about childhood epilepsy. These are copy right protected texts. My one request is that you give Sam and Anna the credit for them. Then feel free to share!
We began this website in a very difficult time in our lives. This is meant to be educational, so others will understand how seizures and epilepsy impacts lives. Please find a good pediatric neurologist if your child has symptoms of Epilepsy. Finding a support network is key to managing the stresses in lives touched by epilepsy. Sam and I would gladly talk to you, if you are dealing with this and need a friend who understands!
index001001.jpg
The contents and links here are meant as an educational tool and to direct you to proper medical care. Please talk to your physician or neurologist if you have concern for your child and seizures.
Seizure First Aid
Join the Stop the Stigma team for the National Walk for Epilepsy in Washington DC
Sam's VEEG Story
Sam's Saga Now
The Brain
Important Links
Epilepsy Foundation of CT
Anna's view of epilepsy
Mom's page
Great books
Sam's third VEEG
Sam's View of Epilepsy
Please checkout our other web page, "Preventing Teen Tragedy"